Bienvenu(e) sur le site de l'Institut Necker Enfants Malades
Samedi 14 octobre 2023
Pr Guillaume Canaud's Pioneering Work: Illuminating Hope for CLOVES Syndrome Patients - A feature in La Croix L'Hebdo Magazine

Marine Lamoureux from La Croix L'hebdo followed Pr Guillaume Canaud and his teams at Hôpital Necker Enfants Malades for an incredible six-month journey - the treatment of children with CLOVES Syndrome.
CLOVES Syndrome is a very rare congenital disorder characterized by a combination of vascular, skin, spinal, and bone or joint abnormalities. Pr Canaud discovered a treatment, thus a turning point in the lives of these patients and their families.

If you’re interested in learning more about their experiences and the work of Pr Canaud and his teams, click here to read more. ​Stunning photos, by Florence Brochoire, and coverage of the challenging journey patients face and the daily activities of a team dedicated to making a difference in the lives of families.

The number featuring this incredible medical and human adventure is also out on stands. Make sure to grab your copy!

Hats off to all the teams and people who contributed, and still are, to this mission. Teamwork makes the dream work!


 
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Parrain(s)
S.A.R. la Princesse Caroline de Hanovre qui, à travers la Fondation Princesse Grace, soutient déjà la recherche medicale et tout ce qui contribue à soulager les enfants malades en France et dans le monde, a accepté de s'engager à nos cotés pour que ce centre de medecine moleculaire, tourné entre autres vers les pathologies des enfants, prenne de vitesse les maladies et continue à relever les defis actuels.

INEM - Organigramme